July 2012 UT - Texas

After much delay, hard decisions, some no choice. Trish is being treated at UT Southwestern in Texas.

She went to meet her new transplant team and series of test a week ago. Came home for enough time to regroup, pack for the long haul.

While they were there for evaluation testing they experienced a bad hotel and a stolen catalytic converter as we all know is nice and pricey. Much more undo stress but moving forward with the new team and she does feel confident in the new DR. which makes a big difference.

So they arrived Monday July 16,2012 a new chapter

Tues 17, - all her tests from week before were normal, they met with their team.

July 18 - she will get 3 ports - out patient,

19 - big dose of chemo

I first off should explain we have had dealt with up rooting for a different kind of transplant for my spouse even though we had some family in Texas Baylor - it still can be trial and suffering in a different way. I can remember to this day how i would so b ready for mail, note and even had a visit from a dear freind so unexpected it brought me to tears. (unfortunately we too had our car theft also and major unexpected expenses so it must be a weird Texas thing) i don't know.

Not just the transplant recipient but the spouse,family and extended can have hidden stress from holding their breath from worry and handling all the bills, home-front, and issues to keep the other strong. So with that said -

the repeating conversation can be stressful, so hopefully family, blog and very closest will receive info.

But, funny, uplifting cards, notes, favorite things, books, mags, fav foods, (they will have little kitchenette) gift cards like visa cards, purchases from signify pink fight like a girl. The simple gestures mean the world. More than you know -

This journey needs everyone to back them up in prayer, gestures, thoughts and anything you feel will help.

You can comment on their blog, email but try to limit txt,patient on replies. We don't quite know how the dosage is going to affect, or what all will be going on their end but will update as soon as we know.

they can receive mail, goodies,or whatever at

 

Hyatt-2914 Harry Hines Dallas, Tx 75201 attn: Dennis or Trish Sneath #121

just be sure to track packages so nothing goes missing

keep posting for the family - C

 

Celia

Moving forward faster!

Things are moving now. Trishs numbers were climbing they are moving forward to try and get control of the situation. Much to the families delight she is getting treatment much needed, they will start on working on her numbers with larger doses of chemo, she will be off in Dr. land starting Tuesday the 10th.

first couple days they will be testing her to work on getting her nbrs adjusted and body ready. they will also do another bone marrow biopsy and see where they are at. She will also be receiving new ports and some shots to help the white cells.

Again i am not versed in all the terminology but i am sure most of us cant even imagine what all is involved in the prep time and things that might arrise.

Please keep them close to your hearts and prayer list.

Not only the cancer, testing, poking and prodding is a test in itself but just the knowing of a confinement coming soon will be difficult in itself.

If all goes well, with this first procedure she will return to hospital and recieve the transplant and be confined and tested and kept watch on. This will be the time she will need to be close to their watch and progess in isolation. The major test in time, I know i am leaving out alot but know that at that point she will need some FB messages, blogging messages and just mail in that sence since she will be away from the public and friends (

If you need more personal info i am sure you can leave messages to either and they may be able to get wiht you but keep in mind they will have their hands full as well as minds to get all this done.

Keep her spirits up in prayer and thoughts! they love you all and the family appreciates all that you can or possibly do.

Again not all info will be posted but as much as we can or they feel we will keep you posted.

Thanks, C

closer to the end of red tape

Trishs numbers started to climb due to the red tape delays of insurance and rules. Short of it she has finaly met the new staff and dr. that she will be dealing with but also still conferring with her Dr. L here.

Due to safety reasons i will not be posting some details but the news is, with chemo if we can get her nbrs down some she will be proceeding with getting put in hospital and getting the large dose to kill everything and get the bone marrow taken and frozen and then put back in.

I am skipping a lot of information due to the dates not set and the chemo numbers but i really feel we are getting close to the big la la!

Just keep them close to your heart, prayers and hope for small nbrs to get the ball rolling.

We will hopefully get some more posting soon, today 6/19/2012 she went for chemo and nbrs so we should know what she has to work towards to get to the next point.

With the insurance and other issues out of the way she is ready to move forward on to the next venture, but i will tell you it has not been an easy road mentally and she is sensitive which she totally deserves to have a bad day and be weepy.

Keep them close on your mind and squeeze in that prayer.

more news soon!

you can always send a funny card,note or hello. Also you can still order from signify pink -(fight like a girl has new products and a percentage goes to trish and family, you just need to find their name.

Red Tape Delay

Our gal, has been doing well, But there has been the stress of a delay and issues with our fun Insurance delay and expenses. Not going into many of the details she is hoping to stay with her current doctor that she is familiar with as he is to her. But some red tape is wanting to send her out of state, even though the medical field is good for their option there are many cons to their choice.

While waiting on all the pros and cons, paperwork, proof and phone calls, her cancer cells are back and running up which is somewhat a disappointment for her and her family but she is still going strong.

The current plan is to start up labs and different doses of chemo. This time it will not be in her port but a different way. They are hoping that they can keep the numbers at bay, till they get word from insurance and funds to go forward in Tulsa.

This is where she will start isolation process wish will be a new challenge but a major safety issue.

While they freeze the bone marrow and distribute it when they get the right numbers they hope to get cancer free cells.

We will update as we get closer, this has been like a 2 to 3 month delay for the family.

So she is just enjoying her day to day, kids, grand kids, family and home life. ( she does have some side effects from her illness and med but not bad enough to keep her down completely.

She is still set up with signify pink (fight with a girl ) and appreciates all the purchases and encouragement.

We are enjoying the visits and calls.

Keep them in your prayers and lists.

The Sneath Family.

More updates as i get them. - C

  

It is almost here!

Trish went to Dr. to find out that now her cancer cells are at 2 percent!!!! can you believe it! from 26 to 2 now. This means the want to get started as soon as possible on this Bone Marrow transplant.

A few hurdles have come up and of course with our lovely insurance companies, regulations and such. But they are working out the kinks.

So hopefully the next big news will be the Transplant!

Just heads up! We will give you all the details as soon as things get going and how we will handle slipping things under the door to her and the rules. I believe it will be a long stay in the confinement area.

Always, the Sneath family

Duh i knew i was late!

I totally just thought i did this. lol - well, our girlie is moving foward. Strong as can be even though a little weepy at times, but hey stronger than me i would be on the floor!

I had a great visit with her group of art girls - as we created. She was updating us on her next hurdles. Trish has seen last of treament for abit and they are meeting i believe by next week to see wht the next step is. Getting closer to the big Bone Marrow visit to her body.

A great hurdle that we will all have to uplift and carry her through.

The babies are growing and she is going be right along side of them even if she has to beat up doctors.

Keep them in your prayers and give them strength, faith, hope and funny stories.

Love everyone and appreciate all the support no matter how big or small!

Updating soon, i promise! - C

New day

Our girlie is going forward. She is starting a new style of living. she will be concentrating on getting stable and continue to get treatments and taking more care of her day to day.

She had made some hard and big decisions about her work, time, and future.

Please send her happy thoughts by mail, or how ever you think, or know her.

Taking one day at a time, she is continuing to get treatments twice a week and get lab results.

The family appreciates all the support and following. Nothing has been forgotten how small, big or gesture you have supported them.

-C