Great News

with much one day Dallas trips and testing Trish  went back today to get her immune and all her test results the most important is her Cancer is 99.2 percent remission. What a happy day and great drive back to Tulsa. God has blessed her and her family. Day to Day and always remember them in prayer that each day is new and healthy! Thanks everyone for your thoughts, prayers and help. they are ever thankful. She will still have days but each day stronger and more hersself, thankful for each day with her family! Love to all.

sorry for the delay

Trish sounds so much more herself. They are having to still travel back and forth but are doing there best to do one day trips so they stay close to home, keep cost down and i am also sure for Dennis to keep up with his work.

She does get tired quickly but definately getting stronger and has her days.

Her numbers are in good range now and she is able to keep food down.

This last testing was numbers, and a immune test to see if she can be exposed to others safely. She will need to still be cautious but should be able to get around some but not large crowds and especialy people, children that are ill.

We are so happy for them. Thank you to all that continue to keep them close in prayer.

more updates as i get them. -C

Home and it is not even the holidays!

Whoo hoo she is home! it is so good to know.  Not sure if  the days flew by but she is home. They got home in time to enjoy their own bed for the weekend. Trying to get settled.

She will have to make a few quick trips to Dallas for checkups but hopefully do most here in Tulsa. They will have to try and get those things confirmed and approved to do.

She sounded good, weak, and tired. but i am sure so glad to be in her own surroundings. She will have to be careful about being around little ones or those whom have them, and live viruses. Also probably all sorts of other things until she gets her strength back.

So if you need to send or take things to them they are home! I am sure they would still appreciate anything or notes of encouragement.

Keep them close in prayer. It is a day to day thing. But know they appreciate everyone and their home!

let you know if anything new comes up.

C 

Latest update Sunday, 2 2012 Sept.

Trishs mom had arrived to help Dennis in support and apparently that got her into office for appt. she was very weak still.

After arriving and requesting Dr. / they found her meds were a little off enough to affect her and they gave her some IV solution.

They feel confident with these changes they will see a turn around and hopefully be able to come home soon.

We will wait for further notice so the address is the same and keep them in prayer.

Love Sneaths 

The latest

Sorry it has been so long, she has had a few visits. the main process retrieval and replaced is done, but the effects are still there.

Sandy went to Texas to see her she was so pleased to see her up and moving slow and communicating. They even walked some.

Things were progressing that the doctors even felt optimistic.
She was released to Hotel to come and go for labs.

What we all didn't know, is how she is battling fatigue, and struggling with food, and upset stomachs. Cant even begin to give you all the details but she is not eating much, there is lot of concern especially since she is not in the hospital care.they are giving her some iv treatments but that's it for now.

Dennis is taking her for lab today Saturday i believe and then they do have an appointment to meet with Dr. so hopefully we will have more information on there plans to get her more stable.

Please pray for them, and keep Dennis strong through all this as the caregiver we tend to forget what they deal with all alone.

Love Sneaths

update?

No real update, so i guess stable, but she has been ill from the side effects of the whole process and meds.

One thing for sure, she needs comfort, funny messages, notes and cards. Any thing humorous to bring a smile and share some love. 

Hopefully more news as we get it.

  this is the address:
Dennis and Trish Sneath. C/O - Hyatt. Room # 121. 2914 Harry Hines. Dallas, TX. 75201

Keep the family close in prayer.  

the hardest part of recovery

Sandy talked to Trish's mom on wed, she said they had Trish up in a chair eating a bit in the morning and walked a little, which she is suppose to walk more the next day.

They had been checking for infection and so far clear. she is doing great.

So now we find that last night Aug 15,she had a set back. She is alright now . She went into Atrial Fib and they were ready to use paddles when she got back to normal on her own.

She is doing fine today.

We hopefully will have an update tomorrow.

Keep Dennis and their family strong in prayer for the ups and downs.

Again, if you would like to send her a card or something this is the address:
Dennis and Trish Sneath. C/O - Hyatt. Room # 121. 2914 Harry Hines. Dallas, TX. 75201

Holding my breath

Was a little nervous there waiting for a call and trying to get into blog spot.password issues.

 Last week Trish came home for a short time to regroup, repack and get ready for her big day.

After getting extremely sick from the high doses of chemo in preparation for the bone marrow transplant she was aching from that and scheduling lots of dental work, she got everything done that she could at this time for them to prep her for no infection, she did say her mouth was sore but she was ready to get all done and home by fall.

Sunday she started loosing her hair so Sandy took her to get it all removed. She said she was ok but how would we be? worried, scared, and who knows? She said you should see me i am not pretty bald, i said well who cares you are same person and you are a beautiful person to all of us,

They admitted her that Monday started fluids and chemo again.

We were all waiting patiently for news, same hotel same room, same hospital but no news.

So now, August 13,2012 got her transplant received8 units which we don't know what that means but done. they have her sedated most likely because pain. they will watch her for 1- 14 days in hospital then she may go back to her room.

We don't know about isolation or if that is the 14 days.

Sandy talked to her mom and that's the new we got.

Keep them close in prayer, and thoughts.
send whatever to the address given before i am sure they will be in and out and not able to leave allot. they will appreciate anything.

Mainly love to the family.

More as soon as i get it.
If anyone knows anything let us know, C

goin homa

After having to do another day of extracting she was released to try and get caught up on the dental issues. In hopes she will clear up all infections to receive her clear bone marrow in a few weeks.

She is worn out, possibly weak. She said she is sore from aches in her bones which is part of the effects from the extraction.

We are hoping she can get through the next few weeks comfortable and  upbeat.

Please hold them and family close to prayer and what you feel they need.

Thanks from them, with much love.
-C

Another day in the big C life

well one drama down and today was the big retrieval, 7 to 8 hours, kind of a close call when they thought about not doing it since her numbers weren't quite where they wanted. But then Dr. A called and said go ahead lets do it.

So today was the big day and she survived with minimal issues.They collected 3 million - amazing? wonder how many a body has? any who, they are going to have to retrieve more Tuesday. They will start the process of freezing what they cllected and what ever else they do to them.

then depending on how that goes she will have to go back to the teeth issue process that was abruptly unfinished, so she will be clear of any infection. Meaning root canals, bunched together. so she can get healed on that before she goes back for the transplant. 

So keep their spirits up and prayers going. They appreciate all of you all and miss you and there family.

I will keep you posted on there wherabouts as soon as we know.  They should be in same hotel but possibly different room number. We will no more after tommorrow.

Than you all and Love from the Sneaths

July 25 Wed

Most of the week was a blurr of weakness due to the cheno and reaction.
Late Tues. she was feeling some better, eating a bit and had overcome most of the sickness.

She is recieving 3 injections a day and Monday is the target date for pulling the cells. She is very optimistic with everything going better than expected. Monday it will take 7 to 8 hours!

Then hoping for news to come home soon! Then the actual transplant will be early August so that is very soon as well.

Keep them close with thoughts and prayers. Send anything you feel this week as long as it is befor Tues. until we know more at the addy we provided.

Love and thankfulness from the family.

I know Dennis and trish are both waiting patiently to see the kiddos. ) and everyone else soon we hope!!!!

Sunday July 22

Sandy spoke with Trish for a short moment she of course was very weak and ill from all the chemo. They put her on meds to get rid all the water she had to consume.

She will be in hospital stay till her numbers come down.

I am sure they are anxious to get to their hotel even though it is not home it is their temporary comfort.

Please send them comfort and encouragement in any way you can, Patient on the phone calls i am sure Dennis is busy holding up the fort,

If you need the addy to their stay let us know.

C 

The Chemo

July 19 - Trish got admitted for chemo treatment- about 12:30 the spent a log time on admit paper work and all that.

They had to wait for test results before chemo starts.

then at 9 ish p.m. still no chemo she also had to consume 6 hours of fluid before the chemo, due to protect her kidneys.

She was receiving a large dose and then another in August. 

Keep her close in thoughts i am sure this will be exhausting and hard on her.

the ports

July 18, 2012  Wed. - Different than before they kept her awake through the process. She said it was strange and she was sore this evening. She will be admitted tomorrow at noon and get out Saturday, which they start the chemo.

She did say she trying to get ready to loose the hair, on a small plus side she will be cool. She will get a really big dose in August.

keep them close in prayer, send them faith and send them a note at the address i posted yesterday, or post a message through the blog.

She did pack up some things to try and stay busy but doesn't beat a note, or package from home for either one of them.

C

July 2012 UT - Texas

After much delay, hard decisions, some no choice. Trish is being treated at UT Southwestern in Texas.

She went to meet her new transplant team and series of test a week ago. Came home for enough time to regroup, pack for the long haul.

While they were there for evaluation testing they experienced a bad hotel and a stolen catalytic converter as we all know is nice and pricey. Much more undo stress but moving forward with the new team and she does feel confident in the new DR. which makes a big difference.

So they arrived Monday July 16,2012 a new chapter

Tues 17, - all her tests from week before were normal, they met with their team.

July 18 - she will get 3 ports - out patient,

19 - big dose of chemo

I first off should explain we have had dealt with up rooting for a different kind of transplant for my spouse even though we had some family in Texas Baylor - it still can be trial and suffering in a different way. I can remember to this day how i would so b ready for mail, note and even had a visit from a dear freind so unexpected it brought me to tears. (unfortunately we too had our car theft also and major unexpected expenses so it must be a weird Texas thing) i don't know.

Not just the transplant recipient but the spouse,family and extended can have hidden stress from holding their breath from worry and handling all the bills, home-front, and issues to keep the other strong. So with that said -

the repeating conversation can be stressful, so hopefully family, blog and very closest will receive info.

But, funny, uplifting cards, notes, favorite things, books, mags, fav foods, (they will have little kitchenette) gift cards like visa cards, purchases from signify pink fight like a girl. The simple gestures mean the world. More than you know -

This journey needs everyone to back them up in prayer, gestures, thoughts and anything you feel will help.

You can comment on their blog, email but try to limit txt,patient on replies. We don't quite know how the dosage is going to affect, or what all will be going on their end but will update as soon as we know.

they can receive mail, goodies,or whatever at

 

Hyatt-2914 Harry Hines Dallas, Tx 75201 attn: Dennis or Trish Sneath #121

just be sure to track packages so nothing goes missing

keep posting for the family - C

 

Celia

Moving forward faster!

Things are moving now. Trishs numbers were climbing they are moving forward to try and get control of the situation. Much to the families delight she is getting treatment much needed, they will start on working on her numbers with larger doses of chemo, she will be off in Dr. land starting Tuesday the 10th.

first couple days they will be testing her to work on getting her nbrs adjusted and body ready. they will also do another bone marrow biopsy and see where they are at. She will also be receiving new ports and some shots to help the white cells.

Again i am not versed in all the terminology but i am sure most of us cant even imagine what all is involved in the prep time and things that might arrise.

Please keep them close to your hearts and prayer list.

Not only the cancer, testing, poking and prodding is a test in itself but just the knowing of a confinement coming soon will be difficult in itself.

If all goes well, with this first procedure she will return to hospital and recieve the transplant and be confined and tested and kept watch on. This will be the time she will need to be close to their watch and progess in isolation. The major test in time, I know i am leaving out alot but know that at that point she will need some FB messages, blogging messages and just mail in that sence since she will be away from the public and friends (

If you need more personal info i am sure you can leave messages to either and they may be able to get wiht you but keep in mind they will have their hands full as well as minds to get all this done.

Keep her spirits up in prayer and thoughts! they love you all and the family appreciates all that you can or possibly do.

Again not all info will be posted but as much as we can or they feel we will keep you posted.

Thanks, C

closer to the end of red tape

Trishs numbers started to climb due to the red tape delays of insurance and rules. Short of it she has finaly met the new staff and dr. that she will be dealing with but also still conferring with her Dr. L here.

Due to safety reasons i will not be posting some details but the news is, with chemo if we can get her nbrs down some she will be proceeding with getting put in hospital and getting the large dose to kill everything and get the bone marrow taken and frozen and then put back in.

I am skipping a lot of information due to the dates not set and the chemo numbers but i really feel we are getting close to the big la la!

Just keep them close to your heart, prayers and hope for small nbrs to get the ball rolling.

We will hopefully get some more posting soon, today 6/19/2012 she went for chemo and nbrs so we should know what she has to work towards to get to the next point.

With the insurance and other issues out of the way she is ready to move forward on to the next venture, but i will tell you it has not been an easy road mentally and she is sensitive which she totally deserves to have a bad day and be weepy.

Keep them close on your mind and squeeze in that prayer.

more news soon!

you can always send a funny card,note or hello. Also you can still order from signify pink -(fight like a girl has new products and a percentage goes to trish and family, you just need to find their name.

Red Tape Delay

Our gal, has been doing well, But there has been the stress of a delay and issues with our fun Insurance delay and expenses. Not going into many of the details she is hoping to stay with her current doctor that she is familiar with as he is to her. But some red tape is wanting to send her out of state, even though the medical field is good for their option there are many cons to their choice.

While waiting on all the pros and cons, paperwork, proof and phone calls, her cancer cells are back and running up which is somewhat a disappointment for her and her family but she is still going strong.

The current plan is to start up labs and different doses of chemo. This time it will not be in her port but a different way. They are hoping that they can keep the numbers at bay, till they get word from insurance and funds to go forward in Tulsa.

This is where she will start isolation process wish will be a new challenge but a major safety issue.

While they freeze the bone marrow and distribute it when they get the right numbers they hope to get cancer free cells.

We will update as we get closer, this has been like a 2 to 3 month delay for the family.

So she is just enjoying her day to day, kids, grand kids, family and home life. ( she does have some side effects from her illness and med but not bad enough to keep her down completely.

She is still set up with signify pink (fight with a girl ) and appreciates all the purchases and encouragement.

We are enjoying the visits and calls.

Keep them in your prayers and lists.

The Sneath Family.

More updates as i get them. - C

  

It is almost here!

Trish went to Dr. to find out that now her cancer cells are at 2 percent!!!! can you believe it! from 26 to 2 now. This means the want to get started as soon as possible on this Bone Marrow transplant.

A few hurdles have come up and of course with our lovely insurance companies, regulations and such. But they are working out the kinks.

So hopefully the next big news will be the Transplant!

Just heads up! We will give you all the details as soon as things get going and how we will handle slipping things under the door to her and the rules. I believe it will be a long stay in the confinement area.

Always, the Sneath family

Duh i knew i was late!

I totally just thought i did this. lol - well, our girlie is moving foward. Strong as can be even though a little weepy at times, but hey stronger than me i would be on the floor!

I had a great visit with her group of art girls - as we created. She was updating us on her next hurdles. Trish has seen last of treament for abit and they are meeting i believe by next week to see wht the next step is. Getting closer to the big Bone Marrow visit to her body.

A great hurdle that we will all have to uplift and carry her through.

The babies are growing and she is going be right along side of them even if she has to beat up doctors.

Keep them in your prayers and give them strength, faith, hope and funny stories.

Love everyone and appreciate all the support no matter how big or small!

Updating soon, i promise! - C

New day

Our girlie is going forward. She is starting a new style of living. she will be concentrating on getting stable and continue to get treatments and taking more care of her day to day.

She had made some hard and big decisions about her work, time, and future.

Please send her happy thoughts by mail, or how ever you think, or know her.

Taking one day at a time, she is continuing to get treatments twice a week and get lab results.

The family appreciates all the support and following. Nothing has been forgotten how small, big or gesture you have supported them.

-C

  

And the Beat goes ON!

Trish has the winding road and she is still the trooper! it was good visiting with her and catching up as always.

Her journey has some additions, she is starting chemo yep, chemo this week! there will be a series of chemo and see if it will improve her nbrs. It will never be a cure but it will be a journey to fight with the nbrs. The nbrs hadnt come down to where they would like them but holding still, which is good.

So not only chemo but dental will begin this week aye, aye, aye, she rather have chemo than dental! anyway, through a series of meeting of great doctor minds, she will find a way to solve the infections she continues to have with the dental issues and they will figure out what they want to do, it will be a slow process a few things at a time but the dental appointments have been booked.

So now we wait after the series of chemos, they will recheck the bone marrow biopsy and see where she stands, and we all know that answer! UPRIGHT!

Then we wait for a transplant to be ready.

She still continue to have lab before the chemo so hopefully we will see the nbrs as they progress.

So everyone take that moment of breath and be strong for the family, keep up the laughs and no dental jokes unless they are good!

We continue to pray, enjoy, call and help them in anyway we or you can is helpful. She still has her account with simplypink - fight like a girl she receives 30 percent. or you can just send to them direct your thoughts, cards or whatever. Keep up the pace, and we will keep you posted.

Thanks again, from the Sneath family, oh and they had a new addition a grandson! Happy, Happy!