July 2012 UT - Texas

After much delay, hard decisions, some no choice. Trish is being treated at UT Southwestern in Texas.

She went to meet her new transplant team and series of test a week ago. Came home for enough time to regroup, pack for the long haul.

While they were there for evaluation testing they experienced a bad hotel and a stolen catalytic converter as we all know is nice and pricey. Much more undo stress but moving forward with the new team and she does feel confident in the new DR. which makes a big difference.

So they arrived Monday July 16,2012 a new chapter

Tues 17, - all her tests from week before were normal, they met with their team.

July 18 - she will get 3 ports - out patient,

19 - big dose of chemo

I first off should explain we have had dealt with up rooting for a different kind of transplant for my spouse even though we had some family in Texas Baylor - it still can be trial and suffering in a different way. I can remember to this day how i would so b ready for mail, note and even had a visit from a dear freind so unexpected it brought me to tears. (unfortunately we too had our car theft also and major unexpected expenses so it must be a weird Texas thing) i don't know.

Not just the transplant recipient but the spouse,family and extended can have hidden stress from holding their breath from worry and handling all the bills, home-front, and issues to keep the other strong. So with that said -

the repeating conversation can be stressful, so hopefully family, blog and very closest will receive info.

But, funny, uplifting cards, notes, favorite things, books, mags, fav foods, (they will have little kitchenette) gift cards like visa cards, purchases from signify pink fight like a girl. The simple gestures mean the world. More than you know -

This journey needs everyone to back them up in prayer, gestures, thoughts and anything you feel will help.

You can comment on their blog, email but try to limit txt,patient on replies. We don't quite know how the dosage is going to affect, or what all will be going on their end but will update as soon as we know.

they can receive mail, goodies,or whatever at

 

Hyatt-2914 Harry Hines Dallas, Tx 75201 attn: Dennis or Trish Sneath #121

just be sure to track packages so nothing goes missing

keep posting for the family - C

 

Celia